Well it's that time of year again and we will be off to Toronto around mid May. We were to follow up in April but I requested to have his appointment in May this year as we had lots of snow and did not know what April would bring, at that time. Now being April 22nd and having had at least 2 significant snowfalls this month alone makes my decision to delay a really good one!!
Lucas is not having any difficulties what-so-ever and he seems to be learning at an acceptable rate. Both boys are registered to start in junior kindergarten in September and they seem to be excited about that.
I'm actually excited to be going to Toronto this time around. We are planning on either visiting the zoo again or go to the aquarium, this decision will likely be made the morning of as the zoo will depend on the weather.
As I'm writing this I'm thinking as to how just 3 years ago I was dreading every trip south, not wanting to have my baby go through what he has now, and just being so unsure about myself and our decisions regarding his surgery and how people would take him and us knowing what he has had done. And I think the main reason I'm thinking about this is because I'm thinking about a friend of mine, from our little northern Ontario town, who also has a son who is facing the cranial vault reconstructive surgery (CVR).
Her son has a different type of craino and his is sagittal craniosynostosis so the suture line on the top of his head has been fused and his head is growing oblong. As much as I am trying to comfort her, and it is not an easy task as I keep thinking back to when I was there myself in her shoes. Indecision and fear is what you woke up to, felt all day long and cried yourself to sleep at night with (even now thinking about this my eyes are welling up with tears.) My only hope for her is that she leans on those willing to help.
I don't know how much I can help her to feel at ease other then to tell her how Lucas did with his surgery as it is a different line all together but the basics of the surgery is the same. When we are in Toronto for Lucas' follow-up we will be in town at the same time that this little boy will be having his surgery and I hope to get up to the surgical waiting room the day of his surgery to see his parents and then the day after to help provide some support to them to know what is in their future days post-op. All the best to you little man!! You and your family are in my thoughts and prayers, and because I have shared about your journey with my family you will be in their prayers as well. Mom please watch over this little guy, as you did in life with Lucas!! (sorry but now tears are actually falling down my cheek.)
Well good night, (or good day depending on when you are reading this) and god bless!!
No comments:
Post a Comment