Well it has apparently been a few weeks since I last posted, dosen't mean that I forgot about this I just have been very buisy!!!
Lucas had his video confrence and that went well we waited longer then the entire video confrence took!! When the doctor came in it was like maybe a 5 minute appointment, and this is how the rest of the follow up appointments will be unless we will be in the Toronto area!!! I think this is wonderful!!!
Lucas has healed great, just had our 6 week post-op date, the only thing I have to say about his healing is that he had 2 spots on his scar where he would scratch and pick at and they really scabbed up, the first one really bumped up one night and we took him to the emergency room as it was 8pm on a Saturday night on Manitoulin Island, But in and out in about 30 minutes your being a mom not a nurse at this point, is pritty much what I was told, also to keep doing what I was doing. I had also e-mailed and spoke with Dr. Phillip's nurse co-ordinator and they believed that the marks were just Lucas' body rejecting the stiches. The other area I'm thinking of was a big scab, so Chris and I took and sofened the scab and got it off and we were then able to take 2 stiches out of that area and get the rest of the stiches out of his head too, but I also took a picture of this and sent it to Alan and to him it looked the same as the other side as it didn't look infected at all and I was then told that this would probally heal in about a week now!! and well it's healing really fast now, but I still put some vasaline on it once in a while to get the scab to stay soft and help the area heal!! Lucas just don't want us to touch his head anymore at all!!! It's kinda like he says just leave me/it alone, NOW!! but aside from that it looks great you can hardly notice the scar now and its still really fresh I can only imagine it in a year!!!
Lucas and Nicholas have also had their year healty baby doctors visit. Their family doc wants to see pictures of Lucas' before and after!! The pictures are comming Just need a little more time!!
The day before the video confrence Nicholas and Lucas had their first birthday and it was also Thanksgiving day, and one of the nicest day that October had seen!! We had their party outside as it was so nice, too nice to be inside!! They enjoyed their cake and gifts and are having so much fun with their new toys!!
My Dad, sister and her family, and my uncle Trevor came out for the party. I was happy to see them there as it was the first time since my moms funeral that I had seen them, and now I'm looking forward to going to the Island for deer season!!! I have 2 weeks off and I think its gonna be great!!!
I'm not sure what we have planned for Christmas yet but that will have to wait until I get my work schedule, but I'm working extra time to get my over time hours just to get on my feet and pay for christmas and birthdays that are comming soon. But on a brighter note I have started to sell Avon and with the Christmas campaigns I have made enough money to pay for my purchase through them!! Free presents!!! nothing better!!!
Well I think thats it for now. I will try to write again soon but I'm not sure if thoes 2 trouble makers will let me. but will try!!
This will follow my son's journey throught finding a diagnosis of Metopic Craniosynostosis to his surgical date and beyond!! And maybe a little on the side!!
Sunday, October 30, 2011
Wednesday, October 5, 2011
Vidoconference
Well we finally have our appointment date and time for Lucas' follow up through video-conference.
His appointment is on Tuesday the 11th I can't wait, he is healing so well. The only problem I have had with this appointment is that I wanted, and almost did, call my mom to tell her when it was!! This is the first appointment since she passed and I'm hoping I wont have a hard time with it but I will probably have to call my Dad to let him know how it went!!!.
On a brighter note the day before his appointment the boys turn 1!!!! Thanksgiving day at our house will also be a 1st birthday party!!! Looking forward to that!!
His appointment is on Tuesday the 11th I can't wait, he is healing so well. The only problem I have had with this appointment is that I wanted, and almost did, call my mom to tell her when it was!! This is the first appointment since she passed and I'm hoping I wont have a hard time with it but I will probably have to call my Dad to let him know how it went!!!.
On a brighter note the day before his appointment the boys turn 1!!!! Thanksgiving day at our house will also be a 1st birthday party!!! Looking forward to that!!
Tuesday, October 4, 2011
Horrible week at home!!
A lot has happened since my last post!! Well the first few days at home with Lucas were ok, but by Saturday morning we were packing up and heading to Sudbury. My mom, who was with us right through everything with the surgery, who traveled with us and helped pay for the hotel and so on, was in the hospital not doing very well. When I got there and seen her she was in ICU and on a breathing machine and several IV medications.
Well that day she had a CT and was doing not to good but not horrible either, she had also had an allergic reaction to some antibiotics that they had given as they found infection in her blood stream. We went home that night but went back to Sudbury Sunday morning, well she was worse!! A lot worse, but one doctor mentioned that it was not even 48 hours yet and to let her try and fight the infection. Well we all went home, or to families houses that were in Sudbury, by 10pm to try to sleep. Well Nicholas woke up at 230am screaming not completely sure why but probably scared of the dark, but at 330am my dad called us, he was staying at a different family members house, saying the hospital called and he wanted us to go in with him.
When we got there, at 400am, the nurse had told us that she was maxed out on all of the drugs he could give her to keep her blood pressure stable. Mom held ok there for a couple hours so at 6am my sister and I went back to where we were staying and got the kids and the rest of our families, and went back to the hospital, dad stayed there. We got back to the ICU waiting room by about 930am and dad had already gone in to see mom again. We convinced him to go and get some breakfast and we had got a coffee for him as well. While my sister and I were there mom had a seizure, so we got dad and the doctor, and this was the point that we finally decided to call the entire family because mom wasn't winning her fight any more.
My sister and I went out to call family and that was the hardest thing I think I had to do!! We waited for all the family to get there and were in and out all day. At about 4pm all the family that needed to be there was and we again spoke to the doctor and made the final decision to stop medications as they weren't working anymore anyway!! Well with in the hour after stopping all the medications mom passed away!!! All of us were there including all of her brothers and sisters and son-in-laws. After I went and held Lucas and he cuddled into me like he knew something was wrong!!!
Well during this week, 2 days later, on Wednesday, I had to call the doctor for Lucas as it looked like he might be getting an infection in his incision. Well speaking to Alan and then sending him the picture it was ok just a little local reaction to the sutures.
That night we went to a wake for a good friend that passed away the same day as mom, and that too was hard to hear!!
Thursday was moms wake/visitation and that went ok boys were ok but wanted mommy!! Friday was the funeral, horrible day all around! Cold rainy day so once we were at the cemetery, it was awful!! We came home Sunday this week and I am finding that I want to call home to talk to mom about some things. I guess its the little things like that that I'm gonna miss the most!!
Mom I miss you and I always will!!! I need you!! and you will always be there with me, only now in spirit!! I love you so much!!
Well that day she had a CT and was doing not to good but not horrible either, she had also had an allergic reaction to some antibiotics that they had given as they found infection in her blood stream. We went home that night but went back to Sudbury Sunday morning, well she was worse!! A lot worse, but one doctor mentioned that it was not even 48 hours yet and to let her try and fight the infection. Well we all went home, or to families houses that were in Sudbury, by 10pm to try to sleep. Well Nicholas woke up at 230am screaming not completely sure why but probably scared of the dark, but at 330am my dad called us, he was staying at a different family members house, saying the hospital called and he wanted us to go in with him.
When we got there, at 400am, the nurse had told us that she was maxed out on all of the drugs he could give her to keep her blood pressure stable. Mom held ok there for a couple hours so at 6am my sister and I went back to where we were staying and got the kids and the rest of our families, and went back to the hospital, dad stayed there. We got back to the ICU waiting room by about 930am and dad had already gone in to see mom again. We convinced him to go and get some breakfast and we had got a coffee for him as well. While my sister and I were there mom had a seizure, so we got dad and the doctor, and this was the point that we finally decided to call the entire family because mom wasn't winning her fight any more.
My sister and I went out to call family and that was the hardest thing I think I had to do!! We waited for all the family to get there and were in and out all day. At about 4pm all the family that needed to be there was and we again spoke to the doctor and made the final decision to stop medications as they weren't working anymore anyway!! Well with in the hour after stopping all the medications mom passed away!!! All of us were there including all of her brothers and sisters and son-in-laws. After I went and held Lucas and he cuddled into me like he knew something was wrong!!!
Well during this week, 2 days later, on Wednesday, I had to call the doctor for Lucas as it looked like he might be getting an infection in his incision. Well speaking to Alan and then sending him the picture it was ok just a little local reaction to the sutures.
That night we went to a wake for a good friend that passed away the same day as mom, and that too was hard to hear!!
Thursday was moms wake/visitation and that went ok boys were ok but wanted mommy!! Friday was the funeral, horrible day all around! Cold rainy day so once we were at the cemetery, it was awful!! We came home Sunday this week and I am finding that I want to call home to talk to mom about some things. I guess its the little things like that that I'm gonna miss the most!!
Mom I miss you and I always will!!! I need you!! and you will always be there with me, only now in spirit!! I love you so much!!
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